Please note: this post is about our experience with PSC and should not be a substitute for health and medical advice from a qualified health professional We are often amazed at how many people do not know the important role that their liver plays in keeping them alive and well. Everyone knows about hearts, lungs, […]
PSC
There is no stopping this liver transplant recipient!
By Sarah in Liver Transplant, Organ Donation Tags: Athletics Victoria, Liver Transplant, organ donation, Primary Sclerosing Cholangitis, PSC, running, Wandin Park
Regular readers will know that my husband had a liver transplant nearly four years ago…he got so sick from an autoimmune disease, PSC, that he came almost too close to dying. But he was one of the lucky ones and after 14 long months of being on the waiting list, he got a donor liver…and […]
Talking about Organ Donation
By Sarah in Liver Transplant, Organ Donation Tags: autoimmune disease, donatelife, liver trasnplant, organ donation, PSC
We did our last scheduled talk at a Melbourne boys school today…we have done five talks in total at this school, meaning approx 1000 boys and their teachers have heard about the importance of organ donation and my husband’s liver transplant journey. Since he had his transplant, we have done quite a few talks, but […]
Talking Organ Donation with the younger generation
By Sarah in Liver Transplant, Organ Donation 5 Comments Tags: becoming an organ donor, donatelife, Liver Transplant, organ donation, PSC
One of the most surprising side effects of my husband having a liver transplant, is that we are have both discovered a passion for talking to others about our story and how important organ and tissue donation is. If you had told us four or so years ago that we would happily do speaking gigs, […]
First Post Liver Transplant Checkup for 2016
By Sarah in Liver Transplant, Organ Donation 1 Comment Tags: autoimmune disease, Liver Transplant, Liver Transplant Unit, organ donation, PSC, transplant
Today, we got up extra early as it was clinic morning…my husband was booked in for his six monthly post liver transplant checkup. Although it was actually his seven month checkup as we both totally forgot about his appointment late last year…first time in about 8 or so years of attending clinic, pre and post, […]
Post Transplant Christmas Party 2015
By Sarah in Liver Transplant, Organ Donation Tags: Christmas, Liver Transplant, organ donation, PSC
Today, we headed back to the hospital where my husband had his transplant for a social reason…to attend the Liver Transplant Unit’s Christmas Breakup. This is one Christmas event that I really enjoy and I can’t believe that this is actually our fourth one…it seems only a short time ago we were attending our first […]
An opportunity to share our organ donation story!
By Sarah in Liver Transplant, Organ Donation Tags: donatelife, Liver Transplant, organ donation, PSC, tissue donation
Today, we were honoured to be invited to speak to a group of theatre nurses who are going to be or have been part of a retrieval team for donor organs. These nurses don’t get to see the whole organ donation story even though they are part of a very important process, so the seminar […]
Giving hope to those waiting for a liver transplant
By Sarah in Liver Transplant, Organ Donation Tags: Liver Transplant, pre-transplant, PSC, transplant, waiting list
Today, my husband and I returned to a hospital where we used to spend a lot of time…it is where he went to the liver clinic for years, where he had his liver transplant and to which he will remain connected as a patient of for the rest of his life. But today was a […]