Today, we were honoured to be invited to speak to a group of theatre nurses who are going to be or have been part of a retrieval team for donor organs. These nurses don’t get to see the whole organ donation story even though they are part of a very important process, so the seminar […]
Liver Transplant
National Carers Week 2015
By Sarah in Health Tags: being a carer, Liver Transplant, National Carers Week 2015, transplant
According to the National Carers Week’s website, there are 2.7 million unpaid carers currently here in Australia and this week is Nationals Carers Week (11th – 17th October 2015). I was a full time carer for my husband a few years ago…this is our story… As regular readers will know, my husband had to have […]
Giving hope to those waiting for a liver transplant
By Sarah in Liver Transplant, Organ Donation Tags: Liver Transplant, pre-transplant, PSC, transplant, waiting list
Today, my husband and I returned to a hospital where we used to spend a lot of time…it is where he went to the liver clinic for years, where he had his liver transplant and to which he will remain connected as a patient of for the rest of his life. But today was a […]
Medical ID – an app feature that might save your life!
By Sarah in App Review, Health Tags: allergies, app review, health, Health App, Liver Transplant, Medical ID, Thyroid cancer
It does worry me that if my husband was involved in an accident, or needed urgent medical attention and I wasn’t with him, how would the medics know that he has had a liver transplant and what medication he is on? He does wear a medic alert disc around his neck, but if that is […]
Remembering The Dummy Run
By Sarah in Liver Transplant, Organ Donation 8 Comments Tags: dummy run, Liver Transplant, organ donation, PSC
Facebook has a feature that reminds you of past events that you have posted about, and today, it reminded us of a day that was one of the most stressful in my husband’s liver transplant journey. It was the day we experienced what is known as a dummy run…it occurs when you get called into […]
My Friday Five – Reasons to be an Organ Donor
By Sarah in Liver Transplant, Organ Donation Tags: DonateLife Week 2015, Liver Transplant, organ donation, organ donor, tissue donation, why be an organ donor
This week is DonateLife Week 2015, and has been all about raising awareness about organ and tissue donation. So for this week’s My Friday Five, I am giving five reasons why you should be a registered organ donor. Be a Super Hero! One organ and tissue donor can transform the lives of 10 or more […]
Organ Donation – When Two Become One
By Sarah in Liver Transplant, Organ Donation 8 Comments Tags: donatelife, DonateLife Week 2015, Liver Transplant, organ donation, PSC, transplant, transplant recipient
Continuing this week’s theme of organ donation, I asked my husband to write about what it was like being a transplant recipient…he often gets asked if it feels weird or strange…this is his answer. Warning…there is a picture of his old liver ahead… I don’t have any trouble with the concept of having someone else’s […]
Organ Donation – Waiting to Live Again
By Sarah in Liver Transplant, Organ Donation Tags: Liver Transplant, liver transplant recipient, organ donation, transplant, transplant recipient, waiting list
Being on a waiting list for an organ donor can be somewhat surreal…some patients are only on the list for a day or two, some for a few months, others for years. And it is even more surreal when you are waiting for a cadaver organ (ie from someone who has died). I can’t begin […]